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Tuesday, January 17, 2012

photos from Janneke



out and about the halls of Mac...


My big sisters came to visit.  
I think Emily and Sophia look like doctors giving Rachel my updates.



 My uncle Jim came to visit.  We played a touch-finger game.


I felt well enough to go for more than just a stroll today.  Mom asked Child Life to unlock the piano.  I was pretty happy to tickle the ivories.


Thanks for praying for me.  My dad is staying with me tonight, and tomorrow he gets to meet the doctors while my mom gets a good sleep at home and catches up on stuff. (She misses my sisters alot!)  I am getting more and more energetic with each day, and I can hardly wait to move around in my walker again.

Peace.
Janneke

curious...

So, we are curious as to what Janneke's body is up to.  She is slowly being weaned off the IV dextrose, with her sugar being monitored every two hours.  Within the last 24 hours, there has been no real significant change in her sugar levels.  I appreciate the stability, but this is a different story from what was happening while at the General in St.Catharines just three days ago.

Did Janneke just want to visit Mac?  Why now so stable?  Don't get me wrong; I am thankful for the stability, but I would feel better determining the cause before we take her home.  Endocrinology has assured me that this does happen with low-blood sugar issues with relation to a low growth hormone, and we have a number of tests ahead (not too invasive) that will possibly help with understanding Janneke.

Ralph jokingly said to me, "Sara, there are easier ways of getting away from the house for a few days."  But, we both acknowledge gratitude with having a good team of people helping us at Mac as well as having help with managing things at home.  We continue to be optimistic about this peculiar circumstance.

Yesterday, some of the emotions, sleep deprivation, and frustrations caught up with me, so I made myself go for a long walk.  I was able to explore some parts of the woods (Royal Botannical Gardens) as well as watch a number of deer feed on the Mac university soccer fields.  Something about watching deer and being in the woods reminded me of God's grace - as disguised as it maybe in the circumstances we do not choose, He is always present, always in control. Only by His strength.

Peace.
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Monday, January 16, 2012

At Mac

Yes, we are at McMaster Children's Hospital.  This is a short update because I am using the computer in the Ronald McDonald Room.  Janneke is sleeping better today, and her blood sugars have been stable in the last 24 hours.  We are waiting to connect with endocrinology, and we are hopeful the problem of her sugars will be solved.  (She is still hooked up to IV and her feed pump, so the sugars are stable, but we haven't really solved anything.)  Thanks for your prayers, emails, and notes of encouragement.  I am also thakful for a cell phone that allows me to connect with Ralph, family, friends, the nurse at home (with Rachel) and all the other members of our care team and community! 

We are especially thankful that Emily, Sophia, and Rachel could visit with Janneke.  They were not allowed in the General (St.Catharines), so last night's supper together in her hosptial room was extra special.

Peace for your day.
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